Category Archives: Coping with Cancer

Four Years And Counting…

Fall is my favorite season. It also marks the time of year when I first found out I had breast cancer. This year 2014 marks four years in the making of my cancer-free world. Speaking of milestones, I often I hear people talk about milestone anniversaries when it comes to surviving cancer. However, the term ”cancer survivor” is a bit puzzling to me. Where does this survivorship begin? Do we start counting from the point those fateful words exit the mouth of our diagnosing doctor? Those of us, who have heard those dreaded words, know all to well that we enter into survival mode long before the treatment even begins. Or is it the moment we open our eyes in that post-surgery hospital bed knowing that the cancer has been removed from our bodies, riding us of this disease? For some women, it isn’t even that simple. They have to undergo, surgery, chemotherapy and/or radiation. Where does their tally begin?

I always feel a little funny, as fall approaches each year. Am I allowed to prematurely count this year as another victory too? Is it okay to add another notch in my proverbial belt? Can I place the check in the box as part of my long list of items for “Checklist 2014”? I am a checklist kind of girl after all. I ran my first half marathon for breast cancer…check! I raised over three thousand dollars for breast cancer awareness…check! I have survived another year cancer-free….Ummmmm check? As I sat in the hospital room awaiting my surgery, a wise nurse and breast cancer survivor told me, “You go into that operating room a cancer patient, but you come out of it a cancer survivor”. It is a statement that resonated and sticks with me even today. Still, as fall approaches, I feel like a bit of an imposter. Feeling like a survivor since my diagnosis date was November 1st. But knowing that I didn’t become cancer free until January. It seems like such a silly thing to ponder. But inevitably remains one of the more challenging questions I face, as I grow farther away from when it all began.

Ironically, my diagnosis anniversary falls around breast cancer awareness month. This only fuels the fire of my cancer anniversary dilemma. Am I doing this milestone justice through the eye of the pink ribbon? We hear a lot about the importance of the five-year mark. But I don’t know that I will feel that differently next year. Two years was a big milestone for me. Perhaps four is double that making it just as big. I think I could debate the significance of a diagnosis date versus surgery date for many moons to come. But through the consideration of such a dilemma, I am overlooking the bigger picture. A cancer survivor celebrates the cycle of life no matter where that begins. It is a natural progression that slowly moves through life 365 days a year. Does it really matter what specific day of the year? So in honor of my A-Ha moment, I have decided to celebrate both. I celebrate my awareness of knowing more and creating a plan for survival in the fall. And I celebrate the day I put that survivorship into motion in January. It is one long anniversary, but worth every day in my cycle of life.

SHARE Cancer Support – Breast Cancer Organizations, Helplines, Hotlines and Support

New Guest Blog from …SHARE CANCER SUPPORT.  SHARE Cancer Support offers support to women who are survivors or victims of breast cancer or ovarian cancer. SHARE’s mission is similar to LIVEURBESTLIFE in that we strive to offer support to those undergoing cancer treatment or cancer survivors, as well as advocating for good, healthy habits in general. Below you will find information regarding Breast Cancer Organizations, Helplines, Hotlines and Support.

Thank you SHARE Cancer Support for participating in this collaborative effort to better help facilitate support for those in need.

 

Breast Cancer Organizations, Helplines, Hotlines and Support

SHARE BREAST CANCER

If you have been diagnosed with breast cancer, you may need someone to talk to. Although you may have the support of family and friends who can help you face this condition, sometimes it’s nice to speak to someone completely different – including those who have been through what you are currently experiencing. There are a number of breast cancer organizations and charities that can provide you with the assistance you need, and can book you a place on a support group, where you will be able to meet other people who are being treated for breast cancer, along with those who are survivors.

 

Getting Involved with Breast Cancer Support

The National Breast Cancer Foundation is an organization that specializes in assistance for those who have been diagnosed with this condition. The charity was set up in 1991 by a breast cancer survivor, and today provides a number of resources about the disease, as well as information about fund-raising opportunities. The Breast Cancer Fund specializes in prevention, as well as exposing the risks associated with breast cancer. The website features online seminars, image galleries, resources about the condition, as well as information on how to donate.

SHARE also provides information and support. With SHARE you can learn to become an advocate, volunteering your time, passion and support to those who need you. Learn about special events, volunteering, donating and more with SHARE.

Breast Cancer Helplines

The American Cancer Society also provides a number of resources on their website, as well as a cancer hotline that is open 24 hours a day. You will be able to speak to a company representative if you need some more information about coping with cancer, different treatments that might be available to you, screening information, the importance of prevention, pain control and side effects. SHARE, a cancer charity that provides support for women suffering from ovarian or breast cancer, operates cancer helplines specific to breast cancer and ovarian cancer staffed by survivors of these diseases. SHARE is on Facebook, Twitter, LinkedIn, and Pinterest as well, where there is always a group of friends available to get support from and get involved with.

Support Groups

A support group like SHARE for people who have been diagnosed with breast cancer can be a great way to meet new people and make some new friends as you learn to cope. You will be able to find out more information about the conditions, and meet those who have faced breast cancer and ovarian cancer in the past. You’ll depend on the support of those women who are currently experiencing the same things you are, and they will depend on you too!

 

For more information, visit http://www.sharecancersupport.org/

 

Craving Normalcy

January marks my three year anniversary from breast cancer.  It seems so close but so far away, all at the same time. Even though three years seems like ample time to settle back into life, I still have an underlying sense of craving normalcy.  I wonder if it is something you ever really stop searching for as a cancer survivor.

As a breast cancer survivor, I was forced to reinvent myself in more ways than one.  The most obvious way is physically, a new body means new clothes and new shell of reality.  The second way and less conspicuous but perhaps more important is emotionally.  It takes a while to wrap your mind around the fact that you will be a forever changed person.  In a way, it plays tricks on you and makes you think if I am changed this much on the outside, I must be changed on the inside too.

After diagnosis, things move pretty quickly and it can get overwhelming.  After the initial plan sets in, things start to fall into place and the motion eventually dissipates.  This can be the hardest part because you feel like you should be settling into normalcy but in actuality you are just beginning a new journey in life.  What could be more unsettling than that!

Even years out I am still searching for the time where I am not subconsciously thinking about having a normal day.

After my initial surgery, I used to inwardly chuckle when people would approach me asking if I was all done with treatment.  People who aren’t touched by the disease don’t always realize what a lengthy process it can be both emotionally and physically. While I appreciated their concern with a smile and a knowing nod I also wanted to laugh and say, “I am only just beginning”!

I think craving is an appropriate word to use when talking about a breast cancer survivor’s “new normal”.  It is a fact finding mission of sorts where it is constantly changing and evolving into something where we finally feel comfort and peace.  A place where we can finally say, “Hey, I think I found my new normal”.  But until you find that comfy zone, you continually crave the normalcy that you once had in your pre-cancer life.

Your new normal can often be redefining to caregivers, family and friends because it inadvertently spills over into their pre- normal state too. Consequently, they must evolve and find a new normal that is dependent on yours.  It is all intertwined.

Right after my surgery, I had some concerns and I called my doctor saying that I just wasn’t sure if everything was right because I hadn’t defined for myself what my “new normal” was yet.  Funny, I had never even heard this term before but that is what it felt like for me.  Later, I learned that this is a popular term used by breast cancer women after diagnosis.  It couldn’t be more true.

Through life, whether you are a cancer survivor or not, we are always evolving as people.  How many people change careers multiple times during their working careers?  Or change partners because they have drifted apart or have just changed as people during their course of their relationship.  It is a natural progression in life.  Why shouldn’t it happen when you experience a traumatic life event such as a cancer diagnosis?  It is disguised as a traumatic response but in actuality is truly a natural progression of life brought on unexpectedly by unforeseen life events.  Therefore, craving normalcy and redefining your “new normal” becomes…well- normal.

Darwinism At Its Finest

 

We are all born with cancer cells but scientists say 2 out of 3 people will never develop the disease during the course of their lifetime.  Why do you ask?  Their body’s immune system has the ability to fight it off.  Consequently, some may never know that cancer was ever a part of them.  As an auto-immune diabetic,  I often wonder what impact this revelation has on those of us who do not “fight off disease” as well as others. What happens to those of us whose bodies literally turn on themselves and attack the very thing that is trying to protect us and keep us in balance?

As a breast cancer survivor, people often ask me if I have a fear of recurrence.  Most of the time, I can honestly say no.  But through the daily management of my diabetes, I sometimes contemplate the intrinsic role that this autoimmune disease plays with respect to my cancer.  I can’t help wonder if somewhere down the road my cancer will spring back to life , compliments of a weakened immune system.

For those of us who have cancer blaming genes ,  triggers can be the culprits of turning the gene on, guiding the key into the keyhole and unlocking an inevitable chain of events.  Sadly, we don’t always know what those triggers are in our bodies.  For me, I believe that one trigger created a domino effect, an autoimmune series of events that started with my miscarriage and ended with my cancer; my thyroiditis and diabetes floating somewhere in between the two.

When faced with my many different illnesses, it was imperative to dissect the different aspects of my health and manage each one individually with the hopes that somewhere in that management lays a little relief for something else, a reverse domino effect of sorts.  I did just that and employed it as a means of survival, finding my way to the other side and ultimately wellness.

“Survival mode” is a common phrase tossed around when discussing traumatic situations and life-threatening illness.  You live each day as a means to the next, never looking back at the day before, fiercely focused on the future while simultaneously struggling to make it to tomorrow.  It’s a must-have mindset in order to get through anything as fearful or intimidating as cancer.  Looking back at my time of illness, there are many things that are a complete blur to me.  I hardly remember significant milestones and events that should be in the forefront in my memory.  But I think that was just my body’s way of protecting me and empowering me to cope with the cancer instead of becoming overwhelmed by it.  Something’s gotta give.

Now years later, I may be fuzzy on the details at times, but am grateful for my inner strength and my wisdom to not always feel the need to prevail over those absent memories I long for in life.  It provided me with the coping mechanisms that I needed most to get through my illness and live life to its fullest with my family while tackling cancer at the same time.  I call that …Darwinism-survival of the fittest, fittest at its finest.